If you or someone that you know is suffering with PRP here is a short but very good list of resources in which you can learn all there is to know online about PRP. The Facebook groups are closed groups and require a request to join. Please don't join the groups with the intent of spamming us with bullshit. We are a very serious group that uses the group as a daily resource of support and encouragement because this disease is no joke and is very difficult to deal with for both the patient and their families and or caregivers. If you join and are a spammer, you will be dealt with swiftly.
The Facebook Groups
The PRP Facebook Support Group (requires a request to join)
and
PRP: Going the Natural Route (requires a request to join)
There is also the PRP Alliance website that is maintained by Mr. Bill McCue who ironically enough is also a resident of the great state of Texas. Bill acquired PRP in 2012 and suffered for 20 months before going into full remission. Bill is very involved in advocacy for the PRP community as a whole, he has a good deal of support to assist in his efforts but he has accomplished a great deal of the work by himself. Bill is an awesome man and I hope to meet him in person one day since we both live in the same state.
The PRP Alliance Website
PRP Alliance | The Elusive Diagnosis
This website will single-handedly provide you with a treasure trove of information related to PRP, with newsletters, informative guides and personal stories told by those who have suffered and still do suffer with this strange and confusing disease.
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